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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 2,237 Location: nr Southampton
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Hello all,
someone closely related to me has been to see the GP, having had problems of pain in their back and feet for some years.
having had totally negative blood work and no other symptoms other than fatigue my relative is settled off with diclofenac and paracetamol.
this wk the toes looking increasingly "odd" and feet now very painful they have gone back to the GP to find positive blood work and a referral to see the hospital.
It seems likely that my mum has RA.
I am really, really shocked about this as you know my mum and dad have been our main support here for so many years. my gran does not know yet and will be beside herself I know as she will "know" it is all her fault.
I cannot help but be fearful about my little bernice.
It is such a beautiful day here and its a shame to be thinking about dark clouds.
Have any of your mums been dx post menopausally?
if you are my facebook friend, please keep chat about this on here or in our FB room. NOT on my wall as grandma looks on there! Thanks.
Jenni how to be a velvet bulldoser
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,081
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Wow Jenni, what a bombshell for you and your mum. I'm sorry I can't advise as I'm the only one in my family. I hope your mum gets better treatment than you did and she can avoid major joint damage. It will be hard not to worry for Bernice, Jim is so like me in every way I can't help but worry about every ache and pain he gets. If she does happen to develop the disease, she will have you to guide her through it and fight for what she needs. Take care Jenni and hope you manage to enjoy the weekend, the weather forecast is cracking.
Julie xx
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Rank: Advanced Member  Groups: Registered
Joined: 2/14/2011 Posts: 301 Location: South Hampshire
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Hi Jenni
Really really sorry to hear this. I was diagnosed post menopause - I hit the menopause aged 44 years and I was diagnosed aged 48 - I am 49 now. I had no symptoms whatsoever before that time.
My daughter, 22, now diagnosed, has had problems for a number of years, although declofenic was holding it quite well until recently. She is also hypermobile (over 9 out 9) - so as hypermobile as you can be. We had always assumed her joint problems where because of this. But this year, things got out of control and her fingers swelled and her wrists.
I have another daughter aged 23 and a son aged 18, so I am really hoping and praying that neither of them get it.
Where is the facebook link - as I can't seem to find it? Wont mention this though on it.
Keep positive... it doesn't necessarily mean Bernice will get it. Hopefully she'll be fine. Although there seems to be a genetic link, I am sure there is also a trigger somehow. My daughter was very stressed with her final year at Uni and doing loads of work, job interviews etc when it struck. Mine struck the week before my mum died (I'd been caring for her) - and I was diagnosed 4 weeks after she died. I am glad she never knew. I'll do a bit of research on it.
lots of love
Anne
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Rank: Advanced Member
Groups: Registered
Joined: 12/4/2009
Posts: 2,127
Location: Thornton Cleveleys
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Hi Jenni Sorry to hear this Jenni it must have come as a real shock to you all. Menopause, like childbirth, is another of those 'life' events which, along with the hormonal changes, brings about significant trauma to the bodily functions. Likewise 'stress' events. There is significant ongoing research into these types of genetic links. I hope after further investigation good news follows and it is a minor inflammatory condition easily controlled. At worst with modern drugs RA can be well controlled as you know and the prognosis is very good. Thinking of you at this difficult time. Anne, my daughter aged 23, has Hypermobility scoring 5/9 and I worry considerably about her developing RA. Likewise my youngest son, 16, who has recently been through rheumatology, has come out with the same diagnosis but scoring 9/9. My 17 year old twins don't seem to have these problems. Worrying times. Lyn x
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Rank: Advanced Member
Groups: Registered
Joined: 12/3/2009
Posts: 1,035
Location: in a house
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Yes my R.A CAME ON WITH THE MENOPOUSE .. THOUGH I HAVE NEVER SUFFERD from the menopause . which i am greatfull for as i have got it later in life . luckey i went on till i was nearley 54 . my gran also had r.a she died in 1953 but i guess she may had have more as no treatment As getting to somewhere on a back of a honda 50 miles away . I would had thought my gran had more then R.A SHE DIED AT 57 people tell me she spent a lot of time in bed and had bad legs and bad skin ?? she lived in a thached cottage no running water no loo a well outside no power ( put on in 1963 ) loo was a bucket outside water came in the house in a bucket heated on the range washing up was done on the table in a bowl as no kitchen .When the power was put on my grandad brought a cooker .and had lights downstairs They slept in feather beds .Ohh thank goodness i was not living in that house with R.A My gran must had had it hard . christine The chocolate eating housewife ...The washer woman .....naughty lady
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Rank: Advanced Member  Groups: Registered
Joined: 4/20/2010 Posts: 1,749 Location: Somerset
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Hello Jennie
No my Mother never had RA . Infact she died at aged 84 and certainly she was more
able bodied than me then, part from lung problems, and could easily sit on the floor, where
I def struggle now. And 57 today.
Try not to worry x
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Rank: Advanced Member
Groups: Registered
Joined: 12/3/2009
Posts: 1,035
Location: in a house
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but if your Mum has it Jenni ? she might be like me .And do well on MTX and still be able to help you ? chris The chocolate eating housewife ...The washer woman .....naughty lady
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Rank: Advanced Member  Groups: Registered
Joined: 12/4/2009 Posts: 346
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Sorry to hear this about your Mum, Jenni.
There is a link to autoimmune diseases running through our family. Patrick our son has Crohn's, my brother has Sarcoid, and my grandma and great grandma had ra from what people tell me. When Patrick was diagnosed i remember saying to my brother, that i wish this c****y gene would go away and leave our family alone! So i can fully understand your worry about Bernice.
Hope your Mum gets seen quickly and starts on treatment that works for her.
Best wishes.
Bevxx
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 3,157 Location: Huddersfield
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Hi Jenni,
So sorry to hear your Mum has RA. I hope she can get straight onto some treatment that works for her.
I am the only one in our family with an AI disease as far as I know. My Mum was only 46 when she died so who knows, she could have got RA if she'd lived.
I can understand your concerns for Bernice, I worry about Hannah getting it. I suspect she has hypermobility, I have that too.
Fingers crossed that your Mum responds quickly to treatment.
Love, Doreen xx
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Rank: Advanced Member  Groups: Registered
Joined: 9/5/2010 Posts: 364 Location: mid glamorgan
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Hi Jenni,
So sorry to hear about your mum you are having such a rough time at the moment.. Really hope she gets the right treatment for her as soon as poss to limit any damage..
Take care love ceri xx
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Rank: Advanced Member  Groups: Registered
Joined: 8/25/2010 Posts: 1,289 Location: Buckinghamshire
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hi Jenni,
really sorry to hear that your Mum has RA.
talk about hit you when things are down !!
my Mum didn't have RA ... i was post menopausal when diagnosed by quite a few years.
let's hope she get's good results from her Meds,
Suzanne x
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Rank: Advanced Member Groups: Registered
Joined: 12/3/2009 Posts: 2,237 Location: nr Southampton
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hi again everyone,
thanks for your kindness. if you are on facebook, join the NRAS page and look down the list of people on the left handside and find me- jenni_b
then friend request me!
My mum seems ok in herself. My gran has very severe disease- mainly because for most of her 84 yrs there hasnt been much in the way of treatment. Grandma does well on the MTX treatment, with relatively little in the way of side effect. My prayer is that mum will also do well on the MTX and not have nightmare to treat RA like mine.
my sister has LUPUS.
Right now, at the age of 3 bernie has a food hypersensitivity. thats it. long may it remain that way!
thanks again
Jennihow to be a velvet bulldoser
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Rank: Advanced Member
Groups: Registered
Joined: 3/4/2010
Posts: 576
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Sorry to hear about your Mum Jenni - though she will have a couple of experts in the family! Hope she gets good results soon. xx Ailsa
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,689 Location: Durham
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Sorry to hear about your mum, Jenni, and I can well understand your fears for Bernice. I`m the only one in my family with RA, or any other AI disease, going as far back as Adam & Eve!! Hopefully your mum will get good treatment asap. Kathleen x
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Rank: Advanced Member  Groups: Registered
Joined: 3/8/2010 Posts: 914
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Hi Jenni, Sorry to hear about your mum having RA, I really hope she gets seen very quickly and responds to treatment asap. I know you must be worried about Bernice, I think as mums we all worry about the same for our families. Good luck for your mum and I hope you get some good news soon too. Take care Lorna xx 
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,110 Location: London
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Jenni, so sorry to hear about your mum, what a shock for you all. My mum had RA, and very little treatment available, she was diagnosed aged 17, and it was mainly her feet that suffered, although I remember her not being able to get rings off her fingers etc. I was diagnosed post menopausal, my feet are worst hit, I do ok on mtx, alothough still have reasonable amount of pain everyday. I so understand your fears for Bernice. I hope your mum has meds that work for her, will be thinking of all of you. Poor Gran will be devastated, lots of love x x x x  BARBARA
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Rank: Advanced Member  Groups: Registered
Joined: 12/6/2009 Posts: 177
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Sorry that your mum has RA Jenni. My mum does too and received little treatment and now aged 82 has a severe deformed foot, hands and a knee and hip replacement and hardly any mobility. She also got Hodgkins lymphoma about 12 years ago which also has a connection to RA.
My younger daughter has hypermobility and i worry about her getting RA. My cousin also has severe RA and we are the same age. My RA come after the menopause and i think the symptoms started after a hysterectomy at 35 ish.
The good thing is though that the treatment is so much better than 20 years ago so as you know your mum will get good meds.
Love Shirley x
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Rank: Advanced Member  Groups: Registered
Joined: 12/8/2009 Posts: 124 Location: Wolverhampton
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Hi Jenni,
Have only just picked up this thread.
Very sorry to hear your mum has RA too. No one else in my family has it, so am unable to help there.
Keep strong.
Nina xx
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Rank: Advanced Member Groups: Registered
Joined: 12/3/2009 Posts: 2,237 Location: nr Southampton
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mum hasnt had the official dx yet, still waiting to see the rheummy.
I am hopeful that she hasnt got it too severely. She has been on anti-inflams for a long time and its only now got to the point of being really bad enough to get much attention.
thanks for all your kind messages. Bernie is fine as far as I can tell, no one knows what the future holds and I for one am praying for this one to be spared.
Jenni xxhow to be a velvet bulldoser
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